Privacy Policy

Statement of Privacy Practices


ILRC will only use the consumer’s Protected Health Information (PHI) to interact with the following agencies on a routine basis:

  1. Vocational Rehabilitation
  2. Division of Health and Senior Services
  3. Consumer’s physicians as listed on the Assessment
  4. Other agencies named by the consumer who may be pertinent to the participation on the Consumer Directed Services Program

Information used will be limited to the amount necessary for the intended purpose.

Information will not be made available or disclosed to unauthorized persons or processes.

All information is under lock and key.

Reasonable safeguards will be implemented to prevent incidental uses and disclosures.  Such safeguards include double-locked chart room, safe-protected master copy of chart cabinet keys, and password and screen protection on all computers throughout ILRC.


Request restrictions of uses and disclosures


Confidential communications

Request amendments

Accounting of Disclosures




Your health record contains personal information about you and your health.  This information about you that may identify you and that relates to your past, present, or future physical or mental health condition and related health care services is referred to as Protected Health Information (PHI).  This Notice of Privacy Practices describes how we may use and disclose your PHI in accordance with applicable federal and state law.  It also describes your rights regarding how you may gain access to and control your PHI.

We are required by law to maintain the privacy of PHI and to provide you with notices of our legal duties and privacy practices with respect to PHI.  We are required to abide by the terms of this Notice of Privacy Practices.  We reserve the right to change the terms of our Notice of Privacy Practices at any time.  Any new Notice of Privacy Practices will be effective for all PHI that we maintain at that time.  We will provide you with a copy of the revised Notice of Privacy Practices by posting a copy in our reception area, posting a copy on our website, sending a copy to you in the mail upon request, or providing one to you at your next appointment.


For Treatment:  Your PHI may be used and disclosed by those persons/agencies who are involved in your care for the purpose of providing, coordinating, or managing your health care treatment and related services.  Those persons/agencies may include, but are not limited to, your personal care attendant(s), other Missouri Centers for Independent Living, and the Missouri Department of Health and Senior Services.  This includes consultation with clinical supervisors and other treatment team members.  We may disclose PHI to any other consultant only with your authorization.

For Payment:  We may use and disclose PHI so that we can receive payment for the treatment services provided to you.  This will only be done with your authorization.  Examples of payment-related activities are:  making a determination of eligibility or coverage for insurance/Medicaid benefits, processing claims with your insurance company, Medicaid, reviewing services provided to you to determine medical necessity, or providing necessary information to a payroll agency to provide payment of your services.  If it becomes necessary to use collection processes due to lack of payment for services, we will only disclose the minimum amount of PHI necessary for purposes of collection.

For Health Care Operations:  We may use or disclose, as needed, your PHI in order to support our business activities including, but not limited to, quality assessment activities, employee review activities, licensing and conduction or arranging for other business activities.  For example, we may share your PHI with third parties that perform various business activities (e.g. payroll, billing, or typing services) provided we have a written contract with the business that requires it to safeguard the privacy of your PHI.  For training or teaching purposes, PHI will be disclosed only with your authorization.

Required by Law: Under the law, we must make disclosures of your PHI to you upon your request. In addition, we must make disclosures to the Secretary of the Department of Health and Human Services for the purpose of investigation or determining our compliance with the requirements of the Privacy Rule.

Abuse and Neglect:  We may disclose, as needed, your PHI to Missouri Department of Health and Senior Services, and Division of Medical Services in the event of suspected abuse and/or neglect regarding you, or suspected fraud/abuse of provided programs.

Emergencies:  In the event of an emergency situation, it may be necessary to disclose PHI in order to ensure your health, safety, and welfare.

Without Authorization:  Applicable law and ethical standards permit us to disclose information about you without your authorization only in a limited number of situations.  The types of uses and disclosures that may be made without your authorization are those that are:

  • Required by law, such as the mandatory reporting of child abuse or neglect or mandatory government agency audits or investigations (such as the social work licensing board of the health department).
  • Required by Court Order
  • Necessary to prevent or lessen a serious and imminent threat to the health or safety of a person or the public.  If information is disclosed to prevent or lessen a serious threat, it will be disclosed to a person or persons reasonably able to prevent or lessen the threat, including the target of the threat.

Verbal Permission:  We may use or disclose your information to family members that are directly involved in your treatment, with your verbal permission.

With Authorization:  Uses and disclosures not specifically permitted by applicable law will be made only with your written authorization, which may be revoked.


You have the following rights regarding PHI we maintain about you.  To exercise any of these rights, please submit your request in writing to our Privacy Officer.

  • Right of Access to Inspect and Copy.  You have the right, which may be restricted only in exceptional circumstances, to inspect and copy PHI that may be used to make decisions about your care.  Your right to inspect and copy PHI will be restricted only in those situations where there is compelling evidence that access would cause serious harm to you.  We may charge a reasonable cost-based fee for copies.
  • Right to Amend.  If you feel that the PHI we have about you is incorrect or incomplete, you may ask us to amend the information, although we are not required to agree to the amendment.
  • Right to Request Restrictions.  You have the right to request a restriction or limitation on the use or disclosure of your PHI for treatment, payment, or health care operations.  We are not required to agree to your request.
  • Right to Request Confidential Communication:  You have the right to request that we communicate with you about medical matters in a certain way or at a certain location.
  • Right to a Copy of this Notice.  You have the right to a copy of this notice.


If you believe we have violated your privacy rights, you have the right to file a complaint in writing with our Privacy Officer at Independent Living Resource Center, 1760 Southridge Dr, Jefferson City, Missouri, 65102-6787, or with the Secretary of Health and Human Services at 200 Independence Avenue, S.W. Washington DC, 20201, or by calling (202) 619 0257.  We will not retaliate against you for filing a complaint.